It's been exhausting the past few days & not really much time to update the blog(sorry). Kobi seemed to be really enjoying his treatments (with some encouragement) & it has been helpful having him see the other kids throughout the treatment time. So we had 5 good days & Saturday was "Meltdown day" for both Kobi & Me. Kobi was super flared and itchy this day & everything was just harder. Getting changed was a drama, not itching and staying u...

We have completed day 3 & 4 of Kobi's treatments now and it seems that being prepared with an iPhone on hand & the art of distraction with toys is how we are going to get through each treatment day. Kobi arrives each morning with a freshly picked flower for the reception lady who gives him his robe & off he goes to meet the other kids in the change room to get dressed for treatments. Off he goes for the "bubble bath" and he really loves floating &a...

Ok so it's been a busy few days. We arrived in Montpellier Airport on Sunday around mid-day, got our hire car, figured out how to get out of the airport and off we were on our way to Avene'. So glad Mum was driving cause it's all back to front over here and they don't always seem to use there indicators! Anyway, we made it to Avene', which was about an hours drive or so through hills and along the skinny very windy road (like a tarsealed goats track). Wow the...

Well we survived the first 2 flights. Brisbane to Singapore, 3 movies down, full plane, plenty of kids & and a number of "food" situations we had to take in our stride. Reached Singapore (OMG the airport is HUGE & kinda got lost a little) had a short Airport hotel stop, Kobi showered & wrapped (was flared up from the AC etc on the plane, then bedtime for him & ready for the next 13hrs flight to Rome. Kobi slept the whole flight-AMAZING as ther...